Privacy Policy and Cookies

This policy explains who we are, how we collect, share and use Personal Data, and how you can exercise your privacy rights.

About us

Ataxia and Me is a charity located in South Wales, aiming to raise awareness as well as help aid research into the condition. We are the data controller responsible for protecting personal information you provide to us. Ataxia and Me is registered in England and Wales under charity number 1184030.

If you have any queries about this policy, please contact us by emailing info@ataxiaandme.org

What are personal data

Personal data is information which can be used to detect your identity and includes your name, address, telephone number, and email address. Personal data is also information that can be associated with you, together with other information, e.g. your IP address.

Information we collect

We collect and store personal data you provide to us when you interact with us. Information we may collect will include, for example: name; contact details (including e-mail, telephone, postal address); job role, title and responsibilities within your organisation; reviews, comments, suggestions, opinions, feedback or queries you share with us. On occasion we may supplement the information we collect about you with records maintained by third parties to provide you with information or services you have requested.

We may also collect certain information about you by automated means such as cookies, web beacons and web server logs. For more information, please see our cookie policy section.

How we use your information

In most cases, we will rely on legitimate interests. We use your Personal Information to interact with you, to improve our site and content delivery Except as described in this privacy policy, or as notified to you at the time we collect your information, we will not share your personal information with any third party. Any information you give us is held with appropriate care and security and will only be used as set out in this policy or in ways to which you have consented. These may include communicating with you regarding our programme of events, completing a transaction you may have requested, and sending you periodic communications and surveys.

We may also use your personal information and/or usage information to:

  • enable and allow you to participate at virtual events or to contribute to blog postings  (or to assess your suitability to participate or contribute), including without limitation to respond to your queries or comments
  • operate our site  (including developing new content conducting research and analysing feedback, managing our communications, producing  materials and programmes to further the interest of the charity
  • ask for feedback on our services and products

Sharing your information

with third-party service providers that perform services on our behalf, including, TSO Host without limitation, those that offer, host or operate our systems

to comply with UK law, a judicial proceeding, court order or other legal process, such as requirements of emergency services and/or law enforcement agencies

with other third parties, with your consent

as aggregate or de-identified information with third parties for marketing, advertising, research and other purposes

  •  to conduct web analytics to track the use of our website; this information is shared with Google Analytics and stored on servers in the USA (for more information on Google Analytics, please refer to Google’s privacy policy; alternatively, you can opt out of Google Analytics here).

If data are disclosed to contractors during commissioned data processing they shall be subject to this policy, and, if applicable, to other additional or relevant alternative data privacy provisions and contractual conditions.

Data storage and security

We also protect the security of your data during transmission online using Secure Sockets Layer (SSL) encryption software.

Your options

We will not keep your Personal Information for any longer than is necessary. In determining the retention period for your Personal Information, we will take into account relevant factors including requirements under applicable law, our legitimate interests and guidelines issued by competent data protection authorities. Therefore, in most cases, we may retain your Personal Information for six (6) years from the time you stop using our services, but the period may be shorter. We will securely delete Personal Information once it is not required You may withdraw your consent to our processing by emailing us and we will apply your preferences in our future communications. If statutory retention periods require further provision, we will lock those records.

You may also email us to access information we hold about you, or to request rectification of any personal data we hold about you.

Changes to this privacy policy

This privacy policy is subject to changes and updates. We will post any changes on this page.

Contacting us

If you have any queries, questions or comments about our privacy policy, you can contact us at any time by emailing info@ataxiaandme.org – we aim to respond within [7 ]business days. If we are unable to resolve your complaint, you may refer your complaint to the Information Commissioner’s Office by clicking here: https://ico.org.uk/concerns/

Cookie policy

A cookie is a small file sent to your computer, mobile phone, tablet or other device when you visit a website. Cookies are sent by a web server to a web browser to enable the server to collect information from the browser and recognize your device on future visits. These types of files serve a number of different purposes such as remembering your preferences. Cookies help us to provide you with a better website, by enabling us to monitor which pages you find useful and which you do not.

We use traffic log cookies to identify which pages are being used. This helps us to analyse data about web page traffic and improve our website to tailor it better to our users’ needs. We only use this information for statistical analysis purposes.

Cookies do not give us access to your computer or any information about you, other than the data you choose to share with us. You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer; this may, however, prevent you from taking full advantage of the website.

Third party services

Our website may contain links to other websites that are owned and managed by third parties. Those websites have their own privacy policies and we do not accept any responsibility or liability for them.

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