This policy explains who we are, how we collect, share and use Personal Data, and how you can exercise your privacy rights.
Ataxia and Me is a charity located in South Wales, aiming to raise awareness as well as help aid research into the condition. We are the data controller responsible for protecting personal information you provide to us. Ataxia and Me is registered in England and Wales under charity number 1184030.
If you have any queries about this policy, please contact us by emailing firstname.lastname@example.org
What are personal data
Personal data is information which can be used to detect your identity and includes your name, address, telephone number, and email address. Personal data is also information that can be associated with you, together with other information, e.g. your IP address.
Information we collect
We collect and store personal data you provide to us when you interact with us. Information we may collect will include, for example: name; contact details (including e-mail, telephone, postal address); job role, title and responsibilities within your organisation; reviews, comments, suggestions, opinions, feedback or queries you share with us. On occasion we may supplement the information we collect about you with records maintained by third parties to provide you with information or services you have requested.
How we use your information
We may also use your personal information and/or usage information to:
- enable and allow you to participate at virtual events or to contribute to blog postings (or to assess your suitability to participate or contribute), including without limitation to respond to your queries or comments
- operate our site (including developing new content conducting research and analysing feedback, managing our communications, producing materials and programmes to further the interest of the charity
- ask for feedback on our services and products
Sharing your information
with third-party service providers that perform services on our behalf, including, TSO Host without limitation, those that offer, host or operate our systems
to comply with UK law, a judicial proceeding, court order or other legal process, such as requirements of emergency services and/or law enforcement agencies
with other third parties, with your consent
as aggregate or de-identified information with third parties for marketing, advertising, research and other purposes
If data are disclosed to contractors during commissioned data processing they shall be subject to this policy, and, if applicable, to other additional or relevant alternative data privacy provisions and contractual conditions.
Data storage and security
We also protect the security of your data during transmission online using Secure Sockets Layer (SSL) encryption software. All information you provide to us is stored on our secure servers.
We will not keep your Personal Information for any longer than is necessary. In determining the retention period for your Personal Information, we will take into account relevant factors including requirements under applicable law, our legitimate interests and guidelines issued by competent data protection authorities. Therefore, in most cases, we may retain your Personal Information for six (6) years from the time you stop using our services, but the period may be shorter. We will securely delete Personal Information once it is not required You may withdraw your consent to our processing by emailing us and we will apply your preferences in our future communications. If statutory retention periods require further provision, we will lock those records.
You may also email us to access information we hold about you, or to request rectification of any personal data we hold about you.
A cookie is a small file sent to your computer, mobile phone, tablet or other device when you visit a website. Cookies are sent by a web server to a web browser to enable the server to collect information from the browser and recognize your device on future visits. These types of files serve a number of different purposes such as remembering your preferences. Cookies help us to provide you with a better website, by enabling us to monitor which pages you find useful and which you do not.
We use traffic log cookies to identify which pages are being used. This helps us to analyse data about web page traffic and improve our website to tailor it better to our users’ needs. We only use this information for statistical analysis purposes.
Cookies do not give us access to your computer or any information about you, other than the data you choose to share with us. You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer; this may, however, prevent you from taking full advantage of the website.
The cookies used on this website are split into the below categories.
Third party services
Our website may contain links to other websites that are owned and managed by third parties. Those websites have their own privacy policies and we do not accept any responsibility or liability for them.