Real Life Ataxia Stories

Below are some real life stories from people who suffer from Ataxia. Their stories help to spread awareness and understanding of the disease.

More Than What’s on the Surface

As part of the Ataxia Aware Project, we are sharing personal accounts of those suffering from Ataxia or other rare conditions. We want to provide a safe space for people...

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Rare disease has no borders

My name is Mark Desa. I'm from Ontario, Canada - just outside of Toronto. I have ARCA1 (or Autosomal Recessive Cerebellar Ataxia type 1). This is my story.

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The Lucky Side of Things

My name is Elise, I am 31 years old and was diagnosed with spastic ataxia in 2011, at age 23. I didn’t know it then, but now, after eight years...

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Journey to Diagnosis

My name is Darcy & this is my story "Life with Ataxia" my journey to diagnosis. I was born July 26th 1992 & I was considered a developmentally delay child....

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