Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
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Please say a big welcome to our new #Volunteer at #Ataxia #RareDisease #Patient #Charity based in Wales with a Global following #MondayMotivation #StrongerTogetherRead More
hello from a new volunteer 🙋🏻♀️BST #Ataxia #AtaxiaAwareness #RareDiseaseDay #Wales #Charity https://t.co/ARnAYvspdFRead More
RT @gsamandouras: Sensory ataxia is disabling. Mapping region-specific sensory tracts during brain surgery has been overlooked but is as im…Read More
RT @HearingDementia: Want to know more about healthcare scientists working in Bioinformatics in NHS Wales... bioinformatics animation and j…Read More
@ConnectingSci @SondraB_RareQoLRead More
RT @RareRevolutionM: On #RareDiseaseDay RARE Revolution Magazine will be raising awareness for the rare community. Check out @RareDiseases…Read More
RT @OGdukeneurosurg: What does this structure do? https://t.co/38lQ6n1AMwRead More
@mashable Should be developed for #Disabled persons / #Ectoskelton aid to #WalkingRead More
"Communicating and Connecting" (info. share with #Medcomms ?)Read More