Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia Awareness
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
** TODAY ** #RareDiseaseDay #RareDiseaseDay2021 #RareDisease #Chocolate #RareReality #Share4Rare #Icare4Rare #ShowYourRare https://t.co/CIZ3bWixKk
Read More@m_harlam https://t.co/H96DD3PQsJ
Read MoreRT @AtaxiasARG: #MDS Commissioned Review: Assessment of #Ataxia Rating Scales and #Cerebellar Functional Tests.. @movedisorder @MDJ_Journa…
Read MoreRT @mike_mitt: And the followup. Thanks Dr Bloom for getting the #kidney #Transplant #patients #COVID19 #vaccinated video from 1 week ago,…
Read MoreRT @m_harlam: Tomorrow February 28th is rare disease day. Ataxia is one of the rare diseases on a long list of diseases that need attenti…
Read MoreRT @premierresearch: “Rare disease studies are complex & demanding, but the working atmosphere and level of engagement among teams and fami…
Read MoreRT @Ring20UK: We are looking forward to celebrating Rare Disease Day with you all tomorrow 🎉 #RareIsMany #RareIsStrong #RareIsProud https:…
Read MoreLooking in from #Ataxia #RareDisease #patients #charity #Wales to listen to closing thoughts from @Psalmy_Bizzle @RareDiseaseGh Speaking via webinar to mark @rarediseaseday #RareDiseaseDay #RareDiseaseDay2021 #ShowYourRare #Share4Rare #RareReality https://t.co/BJwkKW1tIR
Read MoreLooking in from #Ataxia #RareDisease #patients #charity #Wales to listen to @Psalmy_Bizzle @RareDiseaseGh Speaking via webinar to mark @rarediseaseday #RareDiseaseDay #RareDiseaseDay2021 #ShowYourRare #Share4Rare #RareReality https://t.co/JxXBlHa7sx
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