Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
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Diolch / Thank you We are on our #Fundraising mission, and we are %% towards our target Will you #FindYourPower + Support our epic teams Grateful for the huge amount of waves for #charity, along the way https://t.co/qg15iRn4SZRead More
RT @EpilepsySparks: Are you a parent/carer of a child/young person with a neurodevelopmental condition? Be involved in the Visual Processin…Read More
YAY Back on smooth #Cycle path #Tarmac Support the @SuperheroTri Teams of #Ataxia #RareDisease #charity #TeamAtaxia #AtaxiaDragons #ZebraStrutters Via the @Localgiving Summer appeal page https://t.co/8ReTVTwDvwRead More
@SuperheroTri @TheArtisancook @Anne200solo Break out the #Umbrella https://t.co/2tftOXZbv0Read More
Another #Video chat set up to chat with @TorieRobinson10 @DanteLabs #patient #Ataxia #RareDisease https://t.co/s3vdFWF4ZbRead More
Diolch / Thank you.👍 1 Week into our active #Fundraising mission, and we are 46% towards our target🎯 #FindYourPower + Support the teams Grateful for the waves 👋 and honks 🗣📯📢 for #charity, along the way https://t.co/m7HvT2mrQT https://t.co/7KNAN8NlhhRead More
@am_sheffgenet @ChawnerSamuel @Brainunitwales @ResearchWalesRead More
@PMTJames #Wales @GlobalGenes @SCN2AAustralia #epilepsyRead More
@FibroFlutters @SuperheroTri @DV_Theatre Fantastic compilation From #ZebraStruttersRead More