Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
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Get ready for the #Winter Wonder Wheels by signing up with @SuperheroTri for us #Ataxia #raredisease #Patient #Charity #Wales #TeamAtaxia at home = https://t.co/47QjEgiGkW #Fun and #Fundraising https://t.co/a4KbGr2KXjRead More
@BBCRadioWales @WTelegraph @Carmjournal @tivyside @CCPembsRead More
Due to increased cases of #Covid-19 in #hospital and the community, the decision has been made to temporarily suspend visiting to all hospitals with immediate effect. Find out more information here: https://t.co/3FNXAjJOdJRead More
RT @SuperheroTri: Who coming to Winter Wonderwheels powered by MARVEL? Share your SUPER story for the chance to hang out on the course with…Read More
RT @ataxia_global: We just sent our October Newsletter, with the first information about the Ataxia Global Conference that is planned for 1…Read More
Get ready for the #Winter Wonder Wheels by signing up with @SuperheroTri for us #Ataxia #raredisease #Patient #Charity #Wales #TeamAtaxia at home = https://t.co/47QjEg14Wm #Fun and #Fundraising https://t.co/PScqt53tmkRead More
RT @FibroFlutters: @Ataxia_and_Me My strutters pen arrived today along with newly designed mugs 🦓🦓🦓 https://t.co/2WKCduRu2TRead More
@EmmaYhnell @dyskochick info.share #OpenAccessWeekRead More
@FibroFlutters 😱😂 https://t.co/4eQQC1i2SORead More