Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
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RT @FibroFlutters: #COVID19's toll on #smell & #taste: what scientists do & don't know @nresearchnews #sensoryprocessing #sensoryscience @…Read More
@thisiszia @prabhjotrimpy @GeneticDisUK @TheEDSociety @HaemoSocUK @HAE_UK @MetabolicSuppUK @GeneticAll_UK @SickleCellUK Please share you story With #IamNumber17Read More
RT @FibroFlutters: Rare disease patients at risk from no-deal Brexit #brexitRead More
@parthaskar @QAHospitalNews @MCubbonNHS @Prerana_Issar @NikkiKF @AbbieSBrooks @WilmotEmma @RoshanaMN @doctor_oxford @OrthopodReg @MedCrisis Get #BarrysTshirt trendingRead More
RT @hartog_bert: Looking forward! #patientfirstRead More
@ERBQ1991 Aled JonesRead More
@MsArlene_B Plus the legs are a bit more chunkier of the Kemp brothers.Read More
RT @MsArlene_B: Viking 'that was a close shave' could it be Martin Kemps brother Gary Kemp? #MaskedSingerUKRead More
Mel @cysgodycoed1 was diagnosed with #hypophosphatasia at 52 years old after insisting her GP to look into her condition. Listen again to her #podcast #interview here: #IamNumber17 #RareDisease #Cymru #Wales https://t.co/3olfZUoNLXRead More