Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
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RT @kloerp: Just stopped by @DyfedPowys on way home to support the lockdown. A huge thanks from all of us at @HywelDdaHB for everything you…Read More
@camraredisease Diolch / Thank you 👍👍👍👍 #RAREfest20Read More
RT @camraredisease: Some #RAREfest20 lockdown art fun going on over in Wales today from @Ataxia_and_Me and friends 😊 Say hi to our media pa…Read More
@GenomicsWales @DrScienceOwl @WalesGenePark @DNAed_tech @EmmaYhnell @CUmedicengage Some pre #Wales #Lockdown Art by our young supporters (nephew +friends) The #Ataxia aware project are #media supporters for @camraredisease #RAREfest20 #RareDisease #communication https://t.co/qVuWUbbEy9Read More
RT @findacure_fdn: Blog Alert! This week’s blog is written by Dawn Baker, the mother of Joseph and Hannah Baker who you know from our #Rar…Read More
RT @mattlloydDCW: Great to see these new videos explaining the NHS Wales Video Consulting service which is vital for people to access healt…Read More
RT @BritishNeuro: @Ataxia_and_Me @EmmaYhnell @HPneuro @DrScienceOwl @WalesGenePark @DrPas84Ele @findacure_fdn @M4RareDiseases Can't believe…Read More
RT @FSWalesUk: The Just Can’t Wait card is free of charge when ordered online. Fill out a few details and they will post your 'Just Can’t W…Read More
@WalesRare @ErnLung #Respiratory #covidRead More