Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
Click on the logo below and like us!
Click on the logo below and Tweet us!
Click on the logo below and follow us!
We are #RareDisease We are #StrongerTogether We #Dazzle4Rare #Wales /#CymruRead More
We are #RareDisease We are #StrongerTogether We #Dazzle4RareRead More
@_AirlinerWorld @WalesOnline > I wonder if the "suspension" of #Flights from #Cardiff will have some sort of Knock on effect to the sponsorship of the @wizzair @CardiffHalf #MarathonRead More
People with #Ataxia have problems with speech co-ordination and walking Ataxia usually gets worse over time, until they become dependant on other for all their needs #Dazzle4Rare #RareDisease #StrongerTogether https://t.co/73Nt3WXpmeRead More
RT @RareBeacon: Thank you for having us and following our work! We're thrilled to #Dazzle4Rare alongside the community this week and 365…Read More
RT @RareRevolutionM: Join @ncbrsfoundation on their 2nd annual Virtual 5K celebrating #GlobalNCBRSAwarenessDay on October 9th You can find…Read More
RT @unitedadvocacy: #Dazzle4RareRead More
RT @FogelLab: Can you guess the diagnosis? Excellent case report by Dr. Molly Fensterwald (with contributions from Drs. Noriko Salamon, Jos…Read More
Have you seen the #IamNumber17 #RareDisease awareness campaign by @TakedaPharma #1in17 #Dazzle4Rare #StrongerTogether https://t.co/4IiX1M9YKsRead More