Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
Click on the logo below and like us!
Click on the logo below and Tweet us!
Click on the logo below and follow us!
RT @Sn4ilEater: Dr Claire Price @red_dragon25 and I will show you how you can extract DNA from fruits, using household products! This is an…Read More
Fantastic attendance at Ask the Expert with #Ataxia #Doctor Susan Perlman via @NAF_Ataxia https://t.co/L8O3amALxNRead More
Some #SuperHero #WednesdayWisdom for our #summer #charity #Appeal page via @Localgiving #fundraising page Supporting #Ataxia #patients #charity #Wales #Cymru #kNOwATAXIA #Raredisease https://t.co/dmM7IZLfLARead More
@healx #AI #RareDisease #HealthRead More
RT @findacure_fdn: Love this!👏Read More
RT @FibroFlutters: @precisionforum @findacure_fdn @SBC_org @cancereu @indousrare @swallowsgroup @RareRevolutionM @camraredisease @raredisor…Read More
RT @precisionforum: If you're interested in partnering with us for our Patient Week in September, please contact lucyhope@precisionmedicine…Read More
RT @precisionforum: Say hello to our fantastic Patient Week partners. 👏 Thank you to @findacure_fdn , @SBC_org , @cancereu , @FibroFlutter…Read More
RT @chabdai: Helen Sworn has interviewed with @CharitableRadio, they are a social enterprise (CIC) set up to share the great work of charit…Read More