Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia Awareness
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
Get paid for your opinion via @rarepatientvoic #Patients and Caregivers of any #Disability #Raredisease, or #health #condition via surveys and interviews to improve #Medical products and services. #RareDisease #Ataxia -- #Zebra Sign Up Today! https://t.co/ENIyhKSfbx
Read MoreToday is the 25th 25 is the #magic number 4 months to International #Ataxia Awareness Day #IAAD 25th #September lookout for #AtaxiaAdvent #kNOwATAXIA #RareDisease https://t.co/7SH7GO5jCK
Read MoreCheckout our #Trustee`s #Ebay page for #school #Laptop #backpacks Black Blue https://t.co/6hFAmTr4yL Be #Ataxia while your on your adventures https://t.co/QLeT9ZXF7V
Read MoreToday is the 25th 25 is the #magic number 4 months to International #Ataxia Awareness Day #IAAD 25th #September lookout for #AtaxiaAdvent #kNOwATAXIA #RareDisease https://t.co/YzQynpsq5b
Read More@LoriWolfHeffner @seizure254 Sadly, ALOT of #Epilepsy #patients mention under or misdiagnosed. continuing care (including age transition) is another concern. tagging others that may have more experience. #EpilepsyAwareness #RareDisease @TorieRobinson10 @EpilepsySparks @PMTJames @krispmelb @SCN2A...
Read More@CureSCA3 #Ataxia #SCA3
Read MoreRT @Lisa_HumMovSci: #turning challenges dynamic balance esp in the real 🌎 in #ataxia patients Prof Ilg @ismpb_org #ICAMPAM2022 https://t.c…
Read MoreRT @Lisa_HumMovSci: #gait & #balance outcomes are impt for #ataxia pts - we need to understand which outcomes to select & the influence of…
Read MoreGet paid for your opinion via @rarepatientvoic #Patients and Caregivers of any #Disability #Raredisease, or #health #condition via surveys and interviews to improve #Medical products and services. #RareDisease #Ataxia -- #Zebra Sign Up Today! https://t.co/Dakj9madLy
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