Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
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@ChrisW_PharmaG @Richard_PharmaG @OxPharmaGenesis #medcomms @_OpenPharma #openaccess #Medical #Science #Communications Any advice 👇👇👇Read More
@RaremarkHealth Did you read the blog post about living with #Ataxia and setting up a #raredisease #patient organisation Article in the the new #IAmNumber17 campaign! Head over to to check it out. https://t.co/gnj6pqBFwSRead More
@Brainunitwales @alanlparker Brilliant stuff #BrainInvolveRead More
RT @Brainunitwales: Apologies for our silence over these past months. We have been working away on something exciting. With the move to vir…Read More
RT @camraredisease: #RAREfest20 to open windows into rare genetic disorders @CambridgeIndyRead More
Join us on Nov 28th **TOMORROW** As #media partners of #RAREfest20 helping put #RareDiseases in the spotlight. @camraredisease 's virtual festival celebrating science, tech and people from the rare disease community. https://t.co/JuKt9LcPGeRead More
#AtHomeWinterWonderWheels #AtHWWW ( @SuperheroTri #FindYourPower with #Wales #Cymru #Ataxia #RareDisease #patients #charity Please support the teams with a #Donation via our @Localgiving #fundraising platform https://t.co/2HUHeHCkLARead More
RT @HannahMeIDD8P: We are changemakers We are award winners We are people navigating a rare life with rare conditions I am raising a rare c…Read More
Q+A with Sue @sookio Via Joel @Glass_Mountains Facebook live #theWPshow https://t.co/hqkVQLqSf5Read More