Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
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@JBBC Enjoy your adventureRead More
@FibroFlutters @alanROYGBIV @ALDConnect @abbvie @ClinTrialsIC @InformaConnect our founder @alanROYGBIV (@Ataxia_and_Me ) is looking forward to joining you #PatientAdvocacyRead More
RT @FibroFlutters: Looking forward to speaking on the #patientperspective panel With @alanROYGBIV, @ALDConnect Jonathan Stokes @abbvie Jo…Read More
RT @AMICULUM_global: Join Matt Burns from @MudskipperBiz in a #webinar hosted by @networkpharma where he, along with Matt Evans, will highl…Read More
#CarersWeek #CarersWeek2022 #CarersRead More
RT @CallyBenvie: I am so lucky an amazing group of friends but meeting someone with the same condition as me and fully understands how hard…Read More
RT @giveasyoulive: 💙📢 Calling all fundraisers! This week you can raise 2X the normal donation for your chosen charity at some of @Giveasyou…Read More
Looking forward to speaking on #Patient Perspective panel via @ClinTrialsIC @InformaConnect 26th May with Carole @FibroFlutters Kathleen @ALDConnect Jonathan @abbvie #kNOwATAXIA Know #ClinicalTrials #PatientAdvocacy https://t.co/NHnYuvOjpORead More
ICYMI, "Blatant Plug" on #ClinicalTrialsDay (Last Friday)Read More