Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
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RT @GlobalGenes: @CuresWReach @goodmanbarb13 So looking forward to this session and all @goodmanbarb13 will bring to the conversation! #GGS…Read More
RT @elisability: New blog post! Join me on a leisurely (and bumpy) stroll around my neighbourhood! @VilleStLambert @cibc @AkeliusMontreal…Read More
RT @_allstripes: Today is the first day of the @GlobalGenes RARE Patient Advocacy Summit! AllStripes is sponsoring 12 of our ambassadors t…Read More
@keithgrimes Hope its temporaryRead More
RT @JMGraglia: Next week I will be speaking with @OnceUponAGene, Shivani Vyas & Daniel Defabio of @DisorderRare at @GlobalGenes #GGSummit.…Read More
RT @TheEDSociety: "Numbness & tingling are very common. A quick look at a database that I have, over the last couple of years, about 2/3 of…Read More
RT @TheEDSociety: "Sleep disorders are also an issue. A study showed 67% of #EDS patients had periodic limb movement disorders compared to…Read More
@LaraBloom @TheEDSociety 🆒 Looking good LaraRead More
RT @GlobalGenes: A behind-the-scenes look into the green room for one of the amazing panels that will start soon sharing insights from arou…Read More