Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia Awareness
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
Louise + @alanROYGBIV Welcome you to #Neuro Speak up #Niwro We meet Friday`s Fortnightly @1.30 @Peoplespeakup1 info@peoplespeakup.co.uk #Llanelli West Wales + #HYBRID Chat about ALL #Brain #Neurological #Health conditions https://t.co/dWPZAlj4hN
Read MoreThe #Patient is the Expert in their own condition #RareDisease #NeverAlone
Read MoreRT @RareBeacon: At Beacon, we are with you, for you and breaking #RareDisease isolation alongside you. We are in this together. You are…
Read MoreRT @RareBeacon: Our Co-Founder Dr @Nick_Sireau sat down with @REMEDi4ALL to discuss how #DrugRepurposing changed his children's condition…
Read MoreRT @FlissWaters: So proud of my team today for pulling off such a fantastic event for over 200 people. Particular thanks and well done to @…
Read MoreRT @RaremindsUK: Delighted to announce Lauren Roberts is our new Head of Development. Lauren brings a wealth of experience working with the…
Read MoreRT @emmattonkin: 📢Another great event coming up from @WalesGenePark @GenomicsWales 👇 April 20th🗓️ https://t.co/K1mQtprzoX
Read MoreRT @MattEagles: Doing the right thing at the right time really matters ! #WIREDHealth @WiredUK #circadianrhythm https://t.co/nyzd7E2mAI
Read MoreJoin Team #Ataxia as we have #fun while #Fundraising from HOME with @SuperheroTri at home event sign up at https://t.co/WGVutamdnQ
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