Ataxia & Me
A non-profit organisation founded by a patient, and run by patients, helping to maximise the patient voice within the medical, health and pharma community.
Ataxia Awareness
Ataxia is a medical condition that causes people to gradually lose control over their body. Ataxia usually gets worse over time until the affected person becomes dependent on others for their needs. Unfortunately, there is no cure.
Click on the numbered cards below to learn more about the condition.
Keep Up to Date
If you want to keep up to date with what’s going on in the Ataxia community, please join us by exploring our social media channels below.
Ataxia is usually caused by damage to the cerebellum, which is the part of the brain that controls movement and coordination. The #cerebellum is.... #ataxia #patients #charity #Wales #AtaxiaAdvent © #kNOwATAXIA https://t.co/eMs6bojvgt
Read MoreWhy 9.25 ? Check out #Ataxia #Advent @ 9.25 am https://t.co/etMPyg60JZ
Read MoreICYMI #3 Ataxia patients are often accused of being drunk, because their symptoms include slurred and unclear speech, slowed eye movements, and swallowing problems, as well as issues..... #Ataxia #Raredisease #patients #charity #Cymru #Wales #kNOwATAXIA #AtaxiaAdvent https://t.co/xaavmrKGvf
Read MoreRT @eurordis: Today is the International Day of Persons with Disabilities! Many people with rare diseases live with motor, sensorineural o…
Read MoreRT @SCAsource: Splice-modifying compounds can regulate whether or not gene therapy is active. This technology could be used to develop new…
Read More#3 Ataxia patients are often accused of being drunk, because their symptoms include slurred and unclear speech, slowed eye movements, and swallowing problems, as well as issues..... #Ataxia #Raredisease #patients #charity #Cymru #Wales #kNOwATAXIA #AtaxiaAdvent https://t.co/1W3hklgJmW
Read MoreWhy 9.25 ? Check out #Ataxia #Advent @ 9.25 am https://t.co/GkpQWequgc
Read MoreICYMI #2 The word ‘ataxia’ comes from the #Greek ‘a taxis’, which means ‘without order’. In some communities in #Cyprus, the word ‘ataxia’ is used to reprimand badly behaved children who are ‘out of order’ !! #ataxia #patients #charity #Cymru #Wales #AtaxiaAdvent © #kNOwATAXI...
Read MoreRT @CCPembs: If you know of anyone living with MS in Pembrokeshire, please share with them and their carers #connecting #communities https…
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