This is a rare genetic condition that results in various facial and body abnormalities. 29th September in the UK is the official awareness day for the syndrome. To find out how you can get involved and make a difference click for more details.

This is a rare genetic condition that results in various facial and body abnormalities. 29th September in the UK is the official awareness day for the syndrome. To find out how you can get involved and make a difference click for more details.