Cerebellar Ataxia Alan Thomas, founder and chairman of Ataxia & Me, shares his journey with Ataxia, offering both challenges and insights on how to navigate this rare disease. Alan also shares the story of how Ataxia & Me came to be! How Did You Get Your Diagnosis? I didn’t know anything about Ataxia until I […]
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Ataxia Only Joking!
Ataxia Only Joking!
Refsum Disease
Refsum Disease – One in a Million. Kristie DeMarco’s Journey As part of the Ataxia Aware project we are sharing personal accounts of those suffering with Ataxia or other rare conditions. We want to provide a safe space for people to talk about their experience with disability, whether themselves or someone close to them. Journey […]
LATE ONSET CEREBELLAR ATAXIA
Late Onset Cerebellar Ataxia As part of the Ataxia Aware project we are sharing personal accounts of those suffering with Ataxia or other rare conditions. We want to provide a safe space for people to talk about their experience with disability, whether themselves or someone close to them. It is only on reflection that I […]