Motability scheme lets individuals who receive certain UK disability/mobility-related allowances trade that allowance for a lease on a brand new vehicle (car, wheelchair-accessible vehicle (WAV), mobility scooter, or powered wheelchair).

This scheme is designed to give those with mobility challenges a way to gain independence and reliable transport without the expense or hassle of buying and maintaining a car outright. It also ensures that costs like insurance, breakdowns, maintenance, which can be big burdens, are handled by the scheme, making life easier and more predictable.

Health and Care Research Wales is a networked organisation, supported by Welsh Government, which brings together a wide range of partners across the NHS in Wales, local authorities, universities, research institutions, third sector and others. We work in close partnership with other government agencies and research funders (both in Wales and across the UK); industry partners; patients; service users; public and other stakeholders. We work together to promote research into diseases, treatments, services and outcomes that can lead to discoveries and innovations which can improve and even save people’s lives.

When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare disease. Global Genes is committed to providing information, resources and connections to all communities affected by rare diseases.
Our RARE Concierge patient service guides are here to help you navigate the complicated world of rare and undiagnosed diseases. No matter where you are in the world, your journey, or what your unique need is, RARE Concierge can help you. Our team has decades of personal and professional experience in rare disease advocacy and support. As patients, caregivers, and advocates, we understand the challenges you and your family face. RARE Concierge can provide resources, education, and important connection free of charge.

The Ataxia Global Initiative (AGI) is a worldwide research platform that has the goal to facilitate the clinical development of therapies for ataxias. AGI´s activities are based on the principles of openness, transparency, flexibility and fairness. Specifically, the AGI promotes sharing of data and biomaterials,
Contributes to the definition of worldwide accepted common standards for clinical research and interventional trials,
Provides information that is relevant to prepare and conduct clinical trials,
Organises and hosts international meetings and conferences to update and educate the field on key issues,
Provides services that support trial readiness,
Offers training and education programmes, and
Provides information about clinical research to people with ataxia and the public.

Euro-ataxia is an international non-profit association whose member organisations work together to help people with progressive ataxia lead their best life. We do this by building a strong organisation that represents people with progressive ataxia throughout Europe. Our Objectives:
To drive forward research and treatment of the ataxias,
To encourage the free flow of information between members on the latest research,
To foster and improve contacts between practitioners interested in the ataxias, and people with ataxia.
To investigate social, political and cultural matters connected to the welfare of people with ataxia, and promote and improve the exchange of this information,
To promote co-operation on an international level between national ataxia organisations,
To raise awareness of ataxia among clinicians, scientists and society.

Disability Wales (DW) is the national association of Disabled People’s Organisations (DPOs) striving to achieve rights, equality and independent living of disabled people in Wales.

DW promotes the adoption and implementation of the Social Model of Disability, which identifies that it is environmental, organisational, and attitudinal barriers that disable people and prevent their full participation in society not their medical conditions or impairments